Autism Website Resources « Utah Parent Center
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Autism Website Resources

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Association for Science in Autism Treatment

Website: http://www.asatonline.org

ASAT is a national, not-for-profit, 501(c)3 organization formed by a group of parents and professionals concerned about the care and treatment of individuals with autism. ASAT is dedicated to disseminating accurate, scientifically valid information about autism and its treatment options.

 

Autism Access

Website: www.autismaccess.com

Autism Access hosts conferences in Utah for families of individuals with autism spectrum disorders.

 

Autism Assistance Resources and Information

Website: www.autismassistance.blogspot.com

Provides information on grants, financial assistance, funding strategies, and other resources to help families coping with autism.

 

Autism Council of Utah

Website: www.autismcouncilofutah.org

The Autism Council of Utah is an independent council working to foster collaboration, communication, and learning among families and agencies.  Their aim is to promote access to resources and responsible information for individuals of all ages who have, or are affected by autism, or related conditions. The Council accomplishes this by supporting statewide partnerships to collaborate on special projects, research, and training.

 

Autism Information Resource at the Utah Parent Center

Website: http://www.utahparentcenter.org/resources_autism.htm

The Utah Parent Center received resources and a lending library from the Autism Society of Utah when it closed in 2003 to assist families of individuals with autism spectrum disorders. When parents call the Center, they can expect to receive information on autism spectrum disorders, peers support, and access to various resources.

 

Autism National Committee

Website: http://www.autcom.org

This organization encourages its individual members and organizational partners toward self-direction and self-empowerment. We welcome the participation of all family members, people with autism/PDD, caring professionals, and other friends who wish to implement, not debate, the right to self-determination by hearing and heeding the voices of people with autism. We have joined together to provide information, support, networking, advocacy, a strong voice in federal legislation and policy, a newsletter, conferences and trainings, a bookstore, a variety of unique publications, and an ongoing reappraisal of fundamental research and treatment issues in the light of what people with autism themselves find meaningful and respectful.

 

Autism Network International

Website: http://ani.autistics.org/

Autism Network International is an autistic-run self-help and advocacy organization for autistic people. The ANI is run by individuals who have autism and provides information, peer support, and tips for coping and problem-solving. The best advocates for people with autism are the people themselves.

 

Autism Research Institute (ARI)

Website: www.autism.com

ARI is primarily devoted to conducting research, and to disseminating the results of research, on the causes of autism and on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood. We provide information based on research to parents and professionals throughout the world.

 

Autism Resource Links

Website: http://www.autism-resources.com/

Index of links regarding the developmental disabilities Autism and Asperger’s Syndrome; including topics such as: definitions of autism, specific issues, libraries, regional interests, items for sale, and much more!

 

Autism Society of America (ASA)

Website: http://www.autism-society.org

Responding to the community’s need for science-based answers and increasing interest in autism research within the national health agencies, the Autism Society of America established the Foundation as its research arm in 1996. The mission of the ASA Foundation is to support quality research to address the many unanswered questions about autism. The ASA Foundation’s goals in fulfillment of that mission are to: support autism research across the full spectrum and lifespan of the disorder; enlist and engage the autism community in autism research; stimulate interest in autism research among scientists and researchers; initiate and support programs that enhance the potential for successful research; attract and provide resources in support of bona fide research projects; and developing and implementing programs to meet these goals presents exciting challenges. In its first five years, the ASA Foundation had already established an ever-expanding track record that has set the stage for continued and greater program growth.

 

Autism Speaks – Biomedical

Website: http://www.autismspeaks.org/index2.php?intro=l

Information about autism, causes, prevention, treatments, biomedical research, and legislation.

 

Autism/PDD Information

Website: http://www.autism-pdd.net/

Guide you to the key issues associated with Autism Spectrum Disorders. There is a growing awareness of the nature of autism and the kinds of approaches to diagnosis, treatment, and care that are likely to be effective in meeting the needs of autistic individuals and their families.

 

AutismLink

Website: www.autismlink.com

AutismLink’s mission is to provide opportunities for inclusion, information, and support; to keep parents, family members of individuals with autism spectrum disorders and individuals with autism apprised of news and information, help them in their quest for services, and also in their quest for camaraderie with others in the autism community.

 

Center for the Study of Autism

Website: http://www.autism.org/contents.html

The center provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions.

 

Centers for Disease Control and Prevention

Website: http://www.cdc.gov/search.do?action=search&queryText=Autism

Information on Autism, MMR vaccine, FAQ’s on the theory of MMR vaccine and autism, research on vaccines and autism, Institute of Medicine reports, general information on autism research, references, other organizations and supporting information.

 

Cure Autism Now (CAN) – Biomedical Treatments

Website: http://www.cureautismnow.org

Cure Autism Now (CAN) is an organization of parents, clinicians, and leading scientists committed to accelerating the pace of biomedical research in autism through raising money for research projects, education and outreach. The organization’s primary focus is to fund essential research through a variety of programs designed to encourage innovative approaches toward identifying the causes, prevention, treatment and a cure for autism and related disorders.

 

Different Roads to Learning

Website: www.difflearn.com

Different Roads to Learning carries over 350 products carefully selected to support the Autism Community. They understand and embrace the unique needs of every child on the spectrum and strive to enable parents and professionals to help children grow to their full potential.

Do2Learn

Website: www.dotolearn.com

When Do2Learn started, they hoped to help children with learning difficulties better understand and adjust to our world. Their goal as parents, educators, and health professionals is to help each person communicate, survive, and adapt to the bigger world.

 

Family Voices

Website: www.familyvoices.org

The mission of Family Voices is to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through their national network, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

 

First Signs

Website: www.firstsigns.org

First Signs, Inc. is a national nonprofit organization dedicated to educating parents and professionals about the early warning signs of autism and related disorders.

 

First Words Project

Website: www.firstwords.fsu.edu

FIRST WORDS Project is a model early identification and intervention program based in the Department of communication Disorders at Florida State University. Staffed by speech-language pathologists and interdisciplinary consultants, we are funded to evaluate the communication development of children from 6 to 24 months of age in Leon County.

 

Global Autism Project

Website: http://www.globalautismproject.org

Their mission is to bridge the global gap in the resources and understanding of autism. They exist to address the needs of children with autism in developing countries, to address the fear that plagues parents of children with autism where there are few resources, and little or no understanding of autism.

 

ICDL

Website: www.icdl.com

Interdisciplinary Council on Developmental and Learning Disorders (ICDL) develops and disseminates information, engage in research activities, sponsor outreach training events, and conduct individualized consultation; has a list of their own publications and links to other sites.

 

Kids Health

Website: http://www.kidshealth.org

KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence. KidsHealth has separate areas for kids, teens, and parents –each with its own design, age-appropriate content, and tone. There are literally thousands of in-depth features, articles, animations, games, and resources –all original and all developed by experts in the health of children and teens.

 

LeannWhiffen.com

Website: www.leannwhiffen.com

Leann is the parent of a child with autism. She has organized resource guides for pediatricians and early intervention agencies in Utah and has compiled information to share with families on managing Autism Spectrum Disorders.

 

MAAP Services for Autism, Asperger’s, and PDD

Website: http://www.maapservices.org

MAAP Services for Autism and Asperger Spectrum is a nonprofit organization dedicated to providing information and advice to families of more advanced individuals with Autism, Asperger’s syndrome, and Pervasive Developmental

Disorder (PDD). Through its quarterly newsletter, The MAAP, the organization provides the opportunity for parents and professionals to network with others in similar circumstances to learn about more advanced individuals within the autism spectrum.

 

Marbles for Miracles

Website: www.marblesformiracles.org

Marbles for Miracles is a fundraising organization founded by caring parents and, together with the help of the art community, is providing financial help for families of children with autism. Their goal is to empower these families by offering sponsorship and discounted rates toward their attendance at seminars and conferences.

 

Mayo Clinic

Website: http://www.mayclinic.com/health/autism/DS00348/DSECTION=5

This website gives basic information about autism, signs and symptoms, causes, when to seek help, screening and diagnosis, and treatment.  There is also a section where parents can ask questions.

 

Medline Plus – Autism

Website: http://www.nlm.nih.gov/medlineplus/autism.html

Medline Plus includes News from the National Institute of Health, Overview of Autism, Diagnosis/Symptoms, Treatment, Alternative Therapy, Rehabilitation/Recovery, Coping, Specific Conditions, Related Issues, Clinical Trials, Genetics, Research, Directories, Organizations, Statistics, Children, and Teenagers.

National Alliance for Autism Research (NAAR)

Website: http://www.naar.org

NAAR’s goal is to change the future for all who struggle with autism spectrum disorders. They are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder.

 

National Institute of Mental Health (NIMH)

Website: http://www.nimh.nih.gov/publicat/autism.cfm

The NIMH mission is to reduce the burden of mental illness and behavioral disorders through research on mind, brain, and behavior. This public health mandate demands that we harness powerful scientific tools to achieve better understanding, treatment, and eventually, prevention of these disabling conditions that affect millions of Americans. Their website includes information on autism and a detailed booklet that describes symptoms, causes, and treatments, is available.

 

NDBDDD

Website: http://www.cdc.gov/ncbddd/autism/

National Center on Birth Defects and Developmental Disabilities seeks to give people accurate and timely information about public health and the Autism Spectrum Disorders. Includes information for families and kids, research, statistics for autism spectrum disorders, what are the signs of autism spectrum disorders, what conditions are included, what are the causes and treatment, is there a connection between vaccines and autism, and what can you do about early detection of autism spectrum disorders.

 

NICHCY

Website: http://www.nichcy.org

NICHCY stands for the National Dissemination Center for Children with Disabilities. We serve the nation as a central source of information on: disabilities in infants, toddlers, children, and youth; IDEA, which is the law authorizing special education; No Child Left Behind (as it relates to children with disabilities); and Research-based information on effective educational practices.

 

NICHD

Website: http://www.nichd.nih.gov/autism/

National Institute of Child Health and Human Development (NICHD)has a goal to provide easy access to the most current information about NICHD research projects, publications, news releases, and other activities related to autism and similar disorders. Select a link below to learn more about NICHD activities in autism research. The NICHD was initially established to investigate the broad aspects of human development as a means of understanding developmental disabilities, including mental retardation, and the events that occur during pregnancy. Today, the Institute conducts and supports research on all stages of human development, from preconception to adulthood, to better understand the health of children, adults, families, and communities.

 

NIDCD

Website: http://www.nidcd.nih.gov

The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that comprise the National Institutes of Health (NIH). NIH is the Federal government’s focal point for the support of biomedical research. NIH’s mission is to uncover new knowledge that will lead to better health for everyone. Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability. NIH is part of the U.S. Department of Health and Human Services.

 

O.A.S.I.S.

Website: www.udel.edu/bkirby/asperger/

OASIS – Asperger Syndrome Information & Support: As parents of children who are diagnosed with Asperger Syndrome, we understand how essential it is that families of children diagnosed with AS and related disorders, educators who teach children with AS, professionals working with individuals diagnosed with AS, and individuals with AS who are seeking support, have access to information. Resources for articles, online support groups, diagnostic scales, related disorders, social skills, adult issues, kids, family, legal, books, etc.

 

Relationship Development Intervention

Website: www.rdiconnect.com

This website describes the RDI program and why parents like to use this intervention. Some reasons for using the program include: systematic, flexibility, developmental, empowering, balancing and normalizing, easy to carry over to everyday life, structured with an emphasis on video-taped feedback and both professional and parent “peer” support.

 

TalkAutism

Website: www.talkautism.org

Features of TalkAutism include: Organizing child’s health and education data; behavior image tools; how to connect with your health professional; autism directory with testimonies and ratings; library of presentations; topics in health, education, support; custom message board; and advocate responses.

 

The P.L.A.Y. Project

Website: http://www.playproject.org/

The Play Project was designed providing effective, low cost, playful interventions right at home. This website describes the many ways that this project has achieved this mission. There are now a couple of P.L.A.Y. Therapists in Utah.

 

Unlocking Autism

Website: http://www.unlockingautism.org

Unlocking Autism is a national on-line support network and provides information on legislation, advocacy, biomedical treatments, behavioral therapies, research, and has a parent-to-parent support hotline.

 

URADD

Website: http://health.utah.gov/autism

URADD collects and shares information about the number of people who have autism spectrum disorders (ASD’s) and other disabilities in Utah, and measures changes in these numbers over time.

 

US Autism and Asperger Association, Inc. (USAAA)

Website: www.usautism.com

The US Autism and Asperger Association’s (USAAA) mission is to enhance the quality of life of individuals and their families/caregivers touched by autism spectrum disorders by providing education and family support through conferences/seminars, published and electronic mediums, and retreats. USAAA distributes information with regard to biomedical treatments/adjunct therapies and research to parents, practitioners, students, and teachers who are associated with the Autism and Asperger communities.

 

Utah F.E.A.T.

Website: www.utahfeat.org or http://utahfeat.blogspot.com

Extensive Resource List for biomedical, books, consultants, dentists, doctors, education, financial, food, government, legal, psychiatrists, respite, schools, socialization, support, trusts, transportation, to provide education, support and guidance to Utah families of children on the autism spectrum, and to enhance the community of professionals and educators serving those families.

 

Utah Medical Home Portal

Website: www.medicalhomeportal.org

This website provides comprehensive autism diagnostic information, Utah resources, and referral information for the primary care practitioner, families, educators, and auxiliary health care providers.

 

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