Down Syndrome « Utah Parent Center
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Down Syndrome

Down syndrome is the most common and readily identifiable chromosomal condition associated with intellectual disabilities. It is caused by a chromosomal abnormality: for some unknown reason, an accident in cell development results in 47 instead of the usual 46 chromosomes. This extra chromosome changes the orderly development of the body and brain. In most cases, the diagnosis of Down syndrome is made according to results from a chromosome test administered shortly after birth.

Just as in the normal population, there is a wide variation in mental abilities, behavior, and developmental progress in individuals with Down syndrome. Their level of intellectual disability may range from mild to severe, with the majority functioning in the mild to moderate range.

This information is from the National Dissemination Center for Children with Disabilities (NICHCY).

It’s very helpful to read more about Down syndrome delay. Following are links to additional information:

NICHCY Down Syndrome Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Down syndrome.  Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.

Utah Down Syndrome Foundation (UDSF)
Toll-free: (877) 499-UDSF (8373)
The UDSF is a Utah non-profit organization that provides outreach, training, counseling, support, education, information, and activities for individuals with Down syndrome, their parents and families, and the community.

National Down Syndrome Society
1.800.221.4602 (Spanish)
NDSS offers authoritative information about Down syndrome, including a new parent video, A Promising Future Together: A Guide for New Parents of Children with Down Syndrome.

National Down Syndrome Congress
1.800.232.6372 (Spanish)
NDSC is also an authoritative source of information on Down syndrome, offering such resources as its New Parent Package, a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges— and joys—of raising a child with Down syndrome.

Resource of Special Note
Woodbine House publishes an impressive collection of low-cost books and DVDs on Down syndrome, including a Parent’s Guide (in English and Spanish) and materials for teachers. Call 1.800.843.7323 or visit:

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