Utah Families for Effective Autism
Treatment (FEAT)
Purpose:
Extensive Resource List for biomedical, books, consultants, dentists,
doctors, education, financial,
food government, legal, psychiatrists,
respite, schools, socialization, support, trusts, transportation, to provide
education, support and guidance to Utah families of children on the autism
spectrum, and to enhance the community of professionals and educators serving
those families.
Autism Council of Utah (ACU)
Purpose: The Autism Council of Utah is an
independent council working to foster collaboration, communication, and
learning among families and agencies.
Their aim is to promote access to resources and responsible information
for individuals of all ages who have, or are affected by autism, or related
conditions. The Council accomplishes
this by supporting statewide partnerships to collaborate on special projects,
research, and training.
OASIS - Asperger Syndrome
Information & Support
Purpose: As parents of children who are diagnosed
with Asperger Syndrome, we understand how essential is it that families of
children diagnosed with AS and related disorders, educators who teach children
with AS, professionals working with individuals diagnosed with
AS, and individuals with AS who are seeking support, have access to
information. Resources for articles, online support groups, diagnostic
scales, related disorders, social skills, adult issues, kids, family, legal,
books, etc.
Association for Science in Autism
Treatment
389 Main Street (781) 397-8943
Suite 202 (781) 397-8887 (FAX)
Malden, ME 02148
Email: info@asatonline.org
Website: http://www.asatonline.org
Purpose:
ASAT is a national, not-for-profit, 501(c) 3 organization formed by a
group of parents and professionals concerned about the care and treatment of
individuals with autism. ASAT is dedicated to disseminating accurate,
scientifically valid information about autism and its treatment options.
Autism
National Committee (AUTCOM)
P.O. Box 429
Forest
Knolls, CA 94933
http://www.autcom.org
Purpose:
This organization encourages its individual members and organizational
partners toward self-direction and self-empowerment. We welcome the
participation of all family members, people with autism/PDD, caring
professionals, and other friends who wish to implement, not debate, the right
to self-determination by hearing and heeding the voices of people with autism.
We have joined together to provide information, support, networking, advocacy,
a strong voice in federal legislation and policy, a newsletter, conferences and
trainings, a bookstore, a variety of unique publications, and an ongoing
reappraisal of fundamental research and treatment issues in the light of what
people with autism themselves find meaningful and respectful.
Autism Network International (ANI)
P.O.
Box 35448
Syracuse, NY 13235-5448
Email:
jisincla@mailbox.syr.edu
Website:
http://ani.autistics.org/
Purpose: Autism Network International is an
autistic-run self-help and advocacy organization for autistic people. The ANI is run by individuals who have
autism and provides information, peer support, and tips for coping and
problem-solving. The best advocates for
people with autism are the people themselves.
Autism/PDD Information
Website: http://www.autism-pdd.net/
Purpose : Guide you to the key issues associated with
Autism Spectrum Disorders. There is a growing awareness of the nature of autism
and the kinds of approaches to diagnosis, treatment, and care that are likely
to be effective in meeting the needs of autistic individuals and their
families.
Autism Resource Links
Website: http://www.autism-resources.com/
Purpose: Index of links regarding the developmental
disabilities Autism and Asperger’s Syndrome; including topics such as: definitions of autism, specific issues,
libraries, regional interests, items for sale, and much more!
Autism Research Institute (ARI)
4182
Adams Avenue (619)
281-7165
San
Diego, CA 92116
Website:
http://www.autismresearchinstitute.com
Purpose:
ARI is primarily devoted to conducting research, and to disseminating the
results of research, on the causes of autism and on methods of preventing,
diagnosing and treating autism and other severe behavioral disorders of
childhood. We provide information based on research to parents and
professionals throughout the world.
Autism Speaks - Biomedical
Website:
http://www.autismspeaks.org/index2.php?intro=1
Purpose: Information about autism, causes, prevention,
treatments, biomedical research, and
legislation.
Autism Society of America (ASA)
7910
Woodmont Ave., Suite 300; (301)
657-0881
Bethesda,
Maryland 20814-3067 (800)
3AUTISM (328-8476)
Website:
http://www.autism-society.org
Purpose:
Responding to the community's need for science-based answers and increasing
interest in autism research within the national health agencies, the Autism
Society of America established the Foundation as its research arm in 1996. The
mission of the ASA Foundation is to support quality research to address the
many unanswered questions about autism. The ASA Foundation's goals in
fulfillment of that mission are to:
· Support autism research across the full spectrum and
lifespan of the disorder
·
Enlist and engage the autism
community in autism research
·
Stimulate interest in autism
research among scientists and researchers
·
Initiate and support programs
that enhance the potential for successful research
·
Attract and provide resources in
support of bona fide research projects
Developing and implementing programs to meet these goals
presents exciting challenges. In its first five years, the ASA Foundation had
already established an ever-expanding track record that has set the stage for
continued and greater program growth.
Centers for Disease Control and
Prevention
Website:
http://www.cdc.gov/search.do?action=search&queryText=Autism
Purpose:
Information on Autism, MMR vaccine, FAQ’s on the theory of MMR vaccine
and autism, Research on vaccines and autism, Institute of Medicine reports,
General information on autism research, references, other organizations and
supporting information.
Center for the Study of Autism
Website: http://www.autism.org/contents.html
4182
Adams Avenue
San
Diego, CA 92116, USA.
Purpose: The center provides information about autism
to parents and professionals, and conducts research on the efficacy of various
therapeutic interventions
Cure Autism Now (CAN) – Biomedical Treatments
5455
Wilshire Blvd. (323) 549-0500
Suite 2250 (888)
8AUTISM (828-8476)
Los Angeles, CA 90036-4234
Email: info@cureautismnow.org
Website: http://www.cureautismnow.org
Purpose: Cure Autism Now (CAN)
is an organization of parents, clinicians and leading scientists committed to
accelerating the pace of biomedical research in autism through raising money
for research projects, education and outreach. The organization's primary focus
is to fund essential research through a variety of programs designed to
encourage innovative approaches toward identifying the causes, prevention,
treatment and a cure for autism and related disorders.
First Signs – Early Intervention & Identification
Website:
www.firstsigns.org
Purpose: Public awareness and early identification
of autism and other developmental disorders communication and language
disorders. Website includes tools for
parents and caregivers. Our
organization aims to educate parents, healthcare providers, early childhood
educators, and other professionals.
Their goals are to improve screening and
referral practices and to lower the age at which young children are identified
with autism and other developmental disorders. The First Signs Web site provides a wealth of vital resources,
covering a range of issues: from healthy development,
to concerns about a child;
from the screening and
referral process, to treatments for autism
spectrum disorders.
First Words Project – Early Identification & Intervention
Website:
www.firstwords.fsu.edu
Purpose:
FIRST WORDS Project
is a model early identification and intervention program based in the
Department of Communication Disorders at Florida State University. Staffed by
speech-language pathologists and interdisciplinary consultants, we are funded
to evaluate the communication development of children from 6 to 24 months of
age in Leon County.
Global Autism Project
6910
Roosevelt Way NE, #201 (206)
850-9265
Seattle,
WA 98115
Website:
http://www.globalautismproject.org
Email:
information@globalautismproject.org
Purpose: Their mission is to bridge the global gap in
the resources and understanding of autism.
They exist to address the needs of children with autism in developing
countries, to address the fear that plagues parents of children with autism
where there are few resources, and little or no understanding of autism.
Interdisciplinary Council on Developmental and Learning
Disorders (ICDL)
Website: www.icdl.com
Purpose: They develop and disseminate information,
engage in research activities, sponsor outreach training events, and conduct
individualized consultations; has a list of their own publications and links to
other sites
International Pre-Autistic Network – Early Identification & Intervention
Website: preautistic@aol.com
Purpose: The International Pre-Autistic Network is an
organization created to provide hope and resources to those parents who are
concerned about early communication and relational difficulties and guidance
for the professionals who work with them. Our knowledge is based up
international research and clinical experience.
Kids Health
Website: http://www.kidshealth.org
Purpose:
KidsHealth is the largest and most-visited site on the Web providing
doctor-approved health information about children from before birth through
adolescence. KidsHealth has separate
areas for kids, teens, and parents — each with its own
design, age-appropriate content, and tone. There are literally thousands of
in-depth features, articles, animations, games, and resources — all original
and all developed by experts in the health of children and teens.
MAAP Services for Autism, Asperger's,
and PDD
P.O. Box 524 (219)662-1311
Crown Point, IN 46308 (219)
662-0638 (FAX)
Email: chart@netnitco.net
Website: http://www.maapservices.org
Purpose:
MAAP Services for Autism and Asperger Spectrum is a nonprofit organization
dedicated to providing information and advice to families of more advanced individuals with Autism, Asperger's syndrome, and Pervasive
developmental disorder (PDD). Through its quarterly newsletter, The MAAP, the organization
provides the opportunity for parents and professionals to network with others
in similar circumstances and to learn about more advanced individuals within
the autism spectrum.
Marbles
for Miracles
Website: www.marblesformiracles.org
Purpose: Marbles for Miracles
is a fundraising organization founded by caring parents and, together with the
help of the art community, is providing financial help for families of children
with autism. Their goal is to empower
these families by offering sponsorship and discounted rates toward their
attendance at seminars and conferences.
Mayo
Clinic.Com
Website: http://www.mayoclinic.com/health/autism/DS00348/DSECTION=5
Purpose: This website gives
basic information about autism, signs and symptoms, causes, when to seek help,
screening and diagnosis, and treatment. There is also a section where parents
can ask questions.
Medline Plus – Autism
Website: http://www.nlm.nih.gov/medlineplus/autism.html
Purpose:
Includes News from the National Institute of Health, Overview of Autism, Diagnosis/Symptoms, Treatment, Alternative
Therapy, Rehabilitation/Recovery, Coping, Specific Conditions, Related Issues,
Clinical Trials, Genetics, Research, Directories, Organizations, Statistics,
Children, and Teenagers.
National Alliance for Autism Research
(NAAR)
99 Wall Street (609)
430-9160
Research Park (888)
777-NAAR (6227)
Princeton, NJ 08540 (609)
430-9163
Email: naar@naar.org
Website: http://www.naar.org
Purpose: NAAR’s goal is to change the future for all who
struggle with autism spectrum disorders.
They are dedicated to funding global biomedical research into the
causes, prevention, treatments, and cure for autism; to raising public
awareness about autism and its effects on individuals, families, and society;
and to bringing hope to all who deal with the hardships of this disorder.
National Center on Birth Defects and
Developmental Disabilities
Website: http://www.cdc.gov/ncbddd/autism/
Purpose: CDC seeks to give people accurate and timely
information about public health and the Autism Spectrum Disorders. includes information for families and kids, research,
statistics for autism spectrum disorders, what are the signs of autism spectrum
disorders, what conditions are included, what are the causes and treatment, is
there a connection between vaccines and autism, and what can you do about early
detection of autism spectrum disorders.
National Dissemination Center for
Children with Disabilities
U.S. Dept. of Education, Office of Special Education
Programs
P.O. Box 1492 (800)
695-0285
Washington, DC 20013-1492 (202)
884-8441
Email: nichcy@aed.org
Website: http://www.nichcy.org
Purpose:
NICHCY stands for the National Dissemination Center for Children with
Disabilities. We serve the nation as a central source of information on:
·
disabilities in infants,
toddlers, children, and youth,
·
IDEA, which is the law
authorizing special education,
·
No Child Left Behind (as it
relates to children with disabilities), and
·
Research-based information on
effective educational practices.
National Institute of Child Health
and Human Development (NICHD)
National Institutes of Health, DHHS (301) 496-5133
31
Center Drive, Rm. 2A32 MSC 2425 (301)
4967101
Bethesda,
MD 20892-2425
Website:
http://www.nichd.nih.gov/autism/
Purpose: The goal of this site is to provide easy
access to the most current information about NICHD research projects,
publications, news releases, and other activities related to autism and similar
disorders. Select a link below to learn more about NICHD activities in autism
research. The NICHD was initially established to investigate the broad aspects
of human development as a means of understanding developmental disabilities,
including mental retardation, and the events that occur during pregnancy.
Today, the Institute conducts and supports research on all stages of human
development, from preconception to adulthood, to better understand the health
of children, adults, families, and communities.
National Institute on Deafness and
Other Communication Disorders Information Clearinghouse (NIDCD)
Communication Avenue (800)
241-1044
Bethesda, MD 20892-3456 (800)
241-1055 (TTD/TTY)
Email: nidcdinfo@nidcd.nih.gov
Website: http://www.nidcd.nih.gov
Purpose:
The National Institute on Deafness and Other Communication Disorders (NIDCD) is
one of the Institutes that comprise the National Institutes of Health
(NIH). NIH is the Federal government's
focal point for the support of biomedical research. NIH's mission is to uncover new knowledge that will lead to
better health for everyone. Simply
described, the goal of NIH research is to acquire new knowledge to help prevent,
detect, diagnose, and treat disease and disability. NIH is part of the U.S.
Department of Health and Human Services.
National Institute of Mental Health
(NIMH)
National Institute of Mental Health (NIMH) (866) 615-NIMH (6464)
National
Institutes of Health, DHHS (301)
443-8431 (TTY)
6001
Executive Blvd. Rm. 8184, MSC 9663 (301)
443-4513
Bethesda, MD
20892-9663
Email:
nimhinfo@nih.gov
Website:
http://www.nimh.nih.gov
Website:
http://www.nimh.nih.gov/publicat/autism.cfm
Purpose: The NIMH mission is to reduce the burden of mental illness and
behavioral disorders through research
on mind, brain, and behavior. This public health mandate demands that we
harness powerful scientific tools to achieve better understanding, treatment,
and eventually, prevention of these disabling conditions that affect millions
of Americans. Their website includes information on
autism and a detailed booklet that describes
symptoms, causes, and treatments, is available.
NICHCY
Website: http://www.nichcy.com
Purpose: They will show you
where to find the best DISABILITIES, DISABILITY and IDEAS resources through our comprehensive,
search-friendly indexes. Simply click
on what you need from the list provided or conduct your own search using the
search box.
Relationship Development Intervention (RDI)
Website: www.rdiconnect.com
Purpose: Describes the RDI program and why parents
like to use this intervention. Some
reasons for using the program include:
systematic, flexibility, developmental, empowering, balancing and
normalizing, easy to carry over to everyday life, structured with an emphasis
on video-taped feedback and both professional and parent “peer” support.
The P.L.A.Y. Project
Website: http://www.playproject.org/
Purpose: The Play Project was designed providing
effective, low cost, playful interventions right at home. This website describes the many ways that
this project has achieved this mission.
There is now a P.L.A.Y. Therapist in Utah.
TalkAutism
Website: www.talkautism.org (888)
355-7161
Purpose: Features include: Organizing child’s health & education data; behavior image
tools; how to connect with your health
professional; autism directory with testimonies and ratings; library of
presentations; topics in health, education, support; custom message board; and
advocates responses.
Unlocking Autism
Website: http://www.unlockingautism.org
Purpose: National on-line support network,
Legislation, advocacy, biomedical treatments, behavioral therapies, research,
parent-to-parent support hotline.
USAAA Autism and Asperger Association
Website: www.usautism.com (801) 649-5752
(866) 997-7638 or (888) 928-8476
Purpose: The US Autism and Asperger Association’s
(USAA) mission is to enhance the quality of life of individuals and their
families/caregivers touched by autism spectrum disorders by providing education
and family support through conferences/seminars, published and electronic
mediums, and retreats. USAAA
distributes information with regard to biomedical treatments/adjunct therapies
and research to parents, practitioners, students, and teachers who are
associated with the Autism and Asperger communities.
Utah Parent Center Information Disclaimer
Utah Parent Center
Celebrating more than 23 years of service!!!
Utah Family Voices - Family
to Family Health Information and Education Center
Family to Family Network – A
Program of DHS/DSPD
Phone: (801)272.1051 * Toll Free Utah:
(800)468.1160 * Fax: (801)272.8907
Email: autisminfo@utahparentcenter.org *
Website: www.utahparentcenter.org
Our mission is to help parents help their children with disabilities to live included, productive lives as members of the community. We accomplish this through the provision of information, training, and peer support. The Utah Parent Center is a private, non-profit organization that receives federal funding to be Utah’s Parent Training and Information Center by the Office of Special Education Programs under grant #H328M020032. The Center also receives funding from other federal, state, and private agencies, organizations, and individual donors. The Utah Parent Center (UPC or Center) does not represent or endorse any particular point of view, program, organization, business or professional unless expressly stated and no endorsement may be inferred by the UPC or any of its funding sources. Every effort is made to provide accurate and complete information. Information provided to the UPC by other individuals, agencies, or organizations is solely the responsibility of the source and readers are encouraged to contact them with questions or concerns. Only approved items are included herein. The UPC is not responsible for information or services provided by agencies, organizations, or individuals listed. Readers are responsible to investigate resources to determine if appropriate when making informed decisions. Permission to reprint the information herein is granted with complete attribution.